Posts Tagged ‘Asperger’s Syndrome’

Live! From Paradise! #256

Friday, April 23rd, 2010

A new environment means adjustment.

Unfortunately, adjustment doesn’t come easily for yours truly, Larry B,

Back in 3rd grade, my teacher, Miss Hinsberger, clued the class in on what separates humans from other animals.

“Animals,” she said, “have to adjust to their environment in order to survive. Humans make their environment adjust to them, and thrive.”

Being young and smart and “maladjusted” (people weren’t throwing around diagnoses like “autism” and “Asperger’s Syndrome” back in that day), and totally crushing on Miss Hinsberger, I took this wisdom straight into my heart, and worked desperately to make my environment adjust to me so I could indeed thrive.

It didn’t work.

You can’t change people, especially if you fear them, and I feared everyone because, in keeping with my Asperger’s, every moment with other people caused me literal, physical pain.

Being with ten thousand people at a baseball game, or a dozen people at a family gathering, or even one person at home, made me feel the way a claustrophobic man or woman would feel trapped in a windowless room.

Absolute terror, distinguished by:

Shortness of breath.

A nose either stuffed fuller than a Thanksgiving turkey or flooding like New Orleans during Hurricane Katrina.

Complete loss of the ability to focus on anything, including relief from the fear.

School was a nightmare. The only positive moments I had during elementary school were when Miss Hinsberger gave me what I saw as a very special smile and said, “Good work.”

No way could I adjust the situation, nor could I adjust myself to it.

Finally, in high school, I found the “cure.”

And taught myself to dance the dance that would let me be like everyone else.

Okay, not everyone. The guy I faked being was James Dean.

James Dean the actor was dead by then, thanks to having crashed his Porsche. But his screen persona lived.

Quiet. Brooding. Untouchable by anything outside himself. Flashing that little smile at a joke only he understood.

On film, James Dean was the coolest guy who ever lived.

In real life, I pushed myself to become as close to that as anyone ever could.

I worked on my new personality for years. Added layers so I could interact with others more comfortably. Became a James Dean who told stories in life and on paper. Who talked quickly and cleverly and shared that little smile with people so realistically they all believed that I, the coolest guy who ever lived, truly was sharing myself with them.

This flattered the hell out of most people, and they became my friends.

The more friends I made, the more successful I became, professionally as well as personally.

The more successful I became, the less painful life seemed. And the more real my grafted-on personality felt to me. The false confidence and ease became genuine. So did the friendships. And loves as well. I continued growing outward, and a terrific thing happened.

I became the person I’d pretended to be. One step beyond Pinocchio, I was a real live man.

As a by-all-available-standards successful man, I was able to design my life to be as nonthreatening to myself as possible.

I was the boss, and what does the boss have to be afraid of? I worked exactly the way I wanted to work, on only the projects that appealed to me, and with only the people I wanted to work with.

I lived exactly the way I wanted as well. In the country — ranches in the L.A. and Santa Fe areas, even the Ozarks. Surrounded by beauty both natural and man-made. With people who loved me. I even had just the right pinch of “celebrity” and so was treated with what to me was the perfect amount of respect.

Then, to make things even more awesome for my family and myself, off I went to a totally new kind of environment. A small town. A street with neighbors who knew nothing about me, and whom I also knew nothing about.

Yikes!

Here I am, on serene Friendly Street, where everyone else knows everyone and says, “Hi!” and hangs together and —

And it terrifies me. The old familiar feeling of being totally out of it, not getting anyone, feeling invaded every time another set of eyes meet mine is back, full throttle.

So here I sit, back in elementary school, completely freaked.

Time to come up with another dance. One that’ll work where I am.

Watch me now.

Larry Brody is an author, veteran television writer and producer. He, his wife and their various animals divide their time between the Ozark Mountains and Puget Sound. The other residents of Larry’s mythical Paradise reside entirely in his imagination and any resemblance to actual places or persons, living or dead, is purely coincidental.

Live! From Paradise! #222

Saturday, August 8th, 2009

Several months ago in this space I came out of the closet of normality and ‘fessed up to having Asperger’s Syndrome, a mild form of autism. After which I braced myself and waited — for a firestorm that never happened.

No, “I always knew you were weird, Larry B.”

Or, “Yep, if ever there was a crackpot writer it’s you, dude.”

After a few weeks a response to my announcement finally came. In the form of an invitation to contribute to a book a friend was writing about his theory that autistic men and women have a greater than normal awareness of what is known by some as “the Great Unknown,” by others as “the Wind of Mystery,” and by still others as:

God.

Turned out he too is an Asperger’s kind of guy, and to him it was no big deal. Certainly nothing to be ashamed of.

So why was I?

I’ve been letting that question percolate for awhile and finally have an answer. I think it’s because in the environment in which I grew up — family, school, neighborhood — I was made to feel guilty about who and what I was. I was regarded as “antisocial” and “introverted,” and being antisocial and introverted were considered bigger sins than gluttony, sloth, and just about anything else short of murder.

“Why don’t you want to talk to people?” my mother would ask when I was a little kid. “Why don’t you want to go outside and play with Melvin and Bumpy when they call for you?”

And, when I was older:

“Aren’t you lonely staying in your room like this?” my father would say. And from more than one teacher: “Don’t you want to just go out and have the kind of fun most teenagers do?”

The replies to those questions were: “I don’t like talking to people. It hurts me too much.”

“Playing with Melvin and Bumpy is fun for Melvin and Bumpy, but not for me.”

“But I’m not alone. I’m with a terrific book.”

And, “The kind of fun most teenagers have isn’t fun for me.”

I didn’t utter any of those replies because the interaction itself would’ve been way too painful. I always felt on the defensive. Under attack.

Simply because I didn’t belong.

And not belonging, not feeling part of any group, is what Asperger’s is all about.

As an adult I’ve kept all this a secret so I wouldn’t have to re-fight my youthful battles. It’s only now that I’m more mature that I’m able to stand up for myself to the outside world the same way I always stood up for myself in my interior one.

I’m comfortable with the differences between the way I perceive and react to the universe and the way most other people do. As I see it, I’m not the one with the problem. Those who’ve spent so much energy unknowingly inflicting pain on me in order to make me more “social” have always been the ones with the problem.

My perception is that because of the way my brain works I’m able to focus on what’s important to me more than most human beings can. I can analyze myself and others and see our foibles from a perspective available only to a watcher who is distanced from his subject. Yet I can go so far inside myself that I connect with the Great Unknown, the Wind of Mystery, and, yes, even God much more intimately than I’m able to communicate with words.

And if in return I lack the wherewithal to make cold phone calls or connect with small talk at parties or feel the joy of leaping from my seat to cheer for my team in the Super Bowl, so be it. I understand that life is a trade-off.

Because I actively take part in that trade every minute of every day.

I understand that I’m luckier than other Asperger’s types. I can feel love for others and love in return. I’ve learned how to connect with those who love me and taught myself to reach out and express my love for them with my body and my words and my soul.

I like these things about myself. They give me great joy.

And I appreciate, possibly also more than I can describe in words, what another friend said to me recently. “You’re the least obnoxious guy with Asperger’s I know.”

In fact, for one brief but shining moment I came this close to feeling that he and I were connected.

Larry Brody is an author, veteran television writer and producer and creative director of Cloud Creek Institute for the Arts. He, his wife and their dogs, cats, horses and chickens live in Marion County. The other residents of the mythical town of Paradise reside in his imagination, however, and any resemblance to actual places or persons, living or dead, is purely coincidental.

Originally published August 8, 2009